"World Rare and Refractory Disease Day" Special Light Up
![](https://en.tokuhain.chuo-kanko.or.jp/img_data/BLOGIMG2130_1.jpg?20210301095550)
!["World Rare and Refractory Disease Day" Special Light Up](https://en.tokuhain.chuo-kanko.or.jp/img_data/CBLOGIMG2130_1_1.jpg?20210301095550)
"Rare·Refractory disease (Rare Disease) refers to treatment because the number of patients is small and the mechanism of the disease is complicated.·It is a disease that is said to have little progress in drug discovery research. February 29, 2009, February 29, the leap year, is "rarity", so on this day, "rarity".·Activities began in Sweden with the aim of raising awareness of intractable diseases, and since then, the last day of February has been called "World Rare".·Events are now being held around the world as "Day of Refractory Diseases (RDD)". Japan also supports the purpose of RDD and has been participating since 2010. On February 28, 2021, the RDD of 2021, Tokyo Tower was specially lit up in the RDD logo color. There are approximately 7,000 rare diseases in the world, with a total of 350 million patients, half of whom are reported to be children. This event serves as a bridge between the affected people and society, and is rare.·It is expected to serve as an opportunity to raise awareness of intractable diseases. From the Sumida River Terrace in Kachidoki, over the Tsukiji Ohashi, which is lit up in white, you can see the glow of "RDD color" that appeals to the theme of RDD2021, "Your RDD 2021, "I want to miss you -We stand in harmony with the RARE community-".